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TOP 5 THINGS TO KNOW ABOUT RIGHT NOW
For Patients

1

YOU ARE NOT ALONE!

There are tens of thousands of families all over the world living satisfying, productive lives that also have this kidney disease.  You can join our community and receive regular updates, news and event information by registering here:

Free ASF Membership

Join Our Staff-Moderated Facebook Support Group

2

LEARN YOUR GENETIC TYPE

Alport Syndrome is a genetic disease and there are several types. It is helpful to know your genetic type for treatment. No-charge or minimum-charge genetic testing may be available to you via KIDNEYCODE and Renasight.

ALPORT SYNDROME GENETICS OVERVIEW

DR. SIMON’S ALPORT 101 VIDEO

3

TREATMENT GUIDELINES

An international group of medical experts created recommended guidelines for treatment. Our disease is rare, but you can empower yourself and your doctor by getting familiar with the guidelines.

Treatment Guidelines

4

FEMALES ARE NOT JUST “CARRIERS”

Females are not just “carriers” of the disease. This terminology and thinking is outdated. Females are patients and need to be treated for the disease. Hear from female patients and the experts in this educational video.

5

THERE IS REASON TO BE HOPEFUL!

There is great reason to be hopeful about the future! Learn about medical research and clinical trials working towards better treatments and possible cures for Alport Syndrome.

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