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ALPORT CONNECT 2021 MEETING

Sat. Aug. 7th & Sun. Aug. 8th

With safety the utmost priority, ASF announced the return of our virtual-only Alport Connect weekend: Saturday, August 7th and Sunday, August 8th, 2021.

Thank you to all those who attended and participated in this year’s gathering!

The no-charge, virtual-only event (for those age 18+) was open to the global Alport Community of patients, affected families/caregivers, and medical professionals. Like last summer, the event was hosted in the ASF Community app. You can view recordings of the 2021 live weekend panels on our YouTube Channel.

Thank you to our Alport Connect 2021 sponsors:

ALPORT CONNECT 2020 MEETING

Due to COVID-19, the 2020 Alport Connect Meeting was held virtually for the first time via the ASF Community app.

Some examples of what attendees said about the 2020 Virtual Alport Connect Meeting:

“It’s been a weird year but being able to connect virtually to others with Alport syndrome was amazing!”

“Clear, concise information that balanced both the medical aspect of Alport syndrome as well as the emotional aspect.”

“I learned so much! I really enjoyed hearing everyone’s personal experiences. I feel more informed than ever thanks to the doctors’ presentations.”

“I really feel that we took away new and valuable information from each session.”

“I’ve been following the Foundation since the beginning, the event honestly made me feel proud and grateful, it was so well done.”

In-Person Meetings (2010-2019)

Crucial Patient/Caregiver, Physician, & Researcher Gatherings

ASF hopes to safely resume in-person meetings in 2022.

  • Adult/Caregivers
  • Teens (ages 13-18)
  • Healthy Happy Kidney Program (Ages 9-12)
  • “Next Level” programming for our returning patients and caregivers

BENEFITS OF ALPORT CONNECT WEEKENDS

  • Meeting other families that relate to your experiences
  • Understanding the latest research from leading experts
  • Learning more about disease management, available resources, and how to self-advocate.
  • Socializing and building bonds with families you will reach to for support over time.

“I would recommend attending the Alport Connect meeting because it’s good to know people who are going through the same thing you are. It was a lot of fun and easy to take in information.”Teen Program Participant, Cleveland 2019

ASF Community Welcome Banner
Photo booth collage from Virtual Alport Family Meeting
http://Janine%20Reed%20Patient%20Moderator

We Hope to See You In Person Soon!

Until then, watch our 2020 Patient Panel Video (at left) and check out some of our prior meeting images on our Flickr Account.

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