CONNECT ON FACEBOOK
The Alport Syndrome Facebook Support Group page is 2,900+ patients strong, and moderated by experienced and knowledgeable patient ambassadors and staff. This is a remarkable place to ask questions, receive valuable feedback, and learn from shared experiences. Request to join today.
CONNECT WITH OTHER FAMILIES
Annual meetings bring together patients, families and medical experts for a weekend of learning and socializing with others who share similar experiences. Connecting in person with other patient families, getting your questions answered by medical experts, empowering yourself with knowledge and creating a network of support can be the best gift you give yourself and your family. Information about our family meetings.