Select Page


Volunteer opportunities for TEENS

Create a short video (less than a minute) telling us your first name (NO last names), city, if you know of others in your family with Alport syndrome, and what you like to do for fun. We’ll add your video to others on our website to help show teens living with AS that they are not alone! (With permission from parents/guardian). Send your video to [email protected]. If you have trouble sending, just email and we’ll figure it out.

Join our teen ambassador efforts. Teens help as assistants at our Family Meetings, get connected to other teens with Alport syndrome, assist with advocacy efforts on policy issues important to Alport patient families, advise on updated content for our website and more. To apply, contact us.

Volunteer Opportunities for YOUNG ADULTS AGES 19-29

Provide your input! ASF Staff and Board of Directors would love guidance on issues of importance to patients and families in this age group. You can assist with advocacy efforts, ongoing programs and services, and with website content. Contact us to get involved!

Volunteer Opportunities for ALL AGES

Raise awareness on social media. “Like” ASF on social media and share our posts on your page to raise awareness. You can find links to all our social media at the bottom of our website.



Share Your Story

Share your story – through your social media page or ask ASF for more information about sharing your story more widely through its communication channels to inspire others.



Bring ASF Literature to Your Doctor

ASF is always looking to raise awareness among medical professionals. Please encourage your physicians to view our “For Medical Professionals” page to view information on diagnosis, genetics, published research, and more. Items such as our Treatment Guidelines can easily be printed and brought directly to your nephrologist.


Share Your Special Skills

Multi-lingual? Artist? Photographer? Writer? Event planner? Organizer? Musician? Runner? If you’re thinking about how you can share your special skill(s) to support ASF’s efforts, contact us.


Speak with other Families to expand ASF’s network of Support

Contact ASF if you would like to share your Alport journey with other patients and families and help them navigate theirs.


Join the Annual Campaign

Become a campaigner for our Annual Campaign, which supports the Alport syndrome Research Program. The campaign takes place in Q4 of each calendar year.

Select Language