Announcements

Click here for our full list of announcements, and stay up to date by subscribing to our newsletter

Events

Are you participating in a Tough Mudder, triathlon, marathon or other race? Join Team ASF and dedicate your efforts to Alport Syndrome. For more details about these and other events click below.

Stories and Videos

Every story counts whether you are a person with the disease, a family member, friend, researcher, healthcare professional, advocate or volunteer. Click to read and share your story.

ABOUT US

The Alport Syndrome Foundation is a non-profit organization founded in 2007 by a group of families...

RESEARCH

The vision of ASF is to find novel treatments and a cure to prevent kidney failure and hearing loss in all patients with Alport Syndrome...

CONNECT

Learn how to interact with other members of the Alport Syndrome Community virtually and/or in person.

RESOURCES

Contact members of our Medical Advisory Committee.

ALPORT SYNDROME

This material is intended for informational purposes only and does not constitute medical advice...

CONTACT US

The Alport Syndrome Foundation is a 501(c)(3) non-profit organization dedicated to improving the lives of those affected by Alport Syndrome...

Frequently Asked Questions

Click to view the list of the most Frequently Asked Questions (FAQs).

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