You are not alone!
There are tens of thousands of people all over the world living satisfying, productive lives who also have this kidney disease.
YOU ARE NOT A “CARRIER”.
You are a patient and should be followed by a nephrologist and possibly treated to slow the progression of your disease. Some medical professionals may not be up to date with current research about women and Alport syndrome.
You can help your kidneys stay as healthy as possible
You can help your kidneys stay as healthy as possible with some nutrition and lifestyle choices recommended by medical professionals.
For more information about Women and Alport Syndrome, watch this video presentation by Dr. Michelle Rheault from the University of Minnesota who serves on the Alport Syndrome Foundation’s Medical Advisory Board.