About Alport Syndrome Foundation

The Alport Syndrome Foundation (ASF) is a volunteer-led organization formed in 2007 by families affected by this disease. We are a 501(c)(3) non-profit corporation, but are essentially a group of concerned families and friends that want to make a difference. The Alport Syndrome Foundation has been built on the past efforts of the late Dr. Curtis Atkin of the University of Utah and the Hereditary Nephritis Foundation (HNF). The Alport Syndrome Foundation is also registerd with Guidestar, an organization dedicated to providing information on non-profits.

Our MISSION is to educate and support patients and their families that have been affected by this genetic kidney disease with the goal of funding research to find more effective treatment protocols and a cure for Alport Syndrome.

Our VISION is simple. We want to:

• Centralize information about Alport Syndrome,
• Provide communication and support for affected patients and families,
• Identify medical resources,
• Build collaboration among patients and the medical community,
• Form strategic alliances with International support groups for worldwide outreach and resources
• Cure Alport Syndrome by accumulating and directing resources to support research.