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WELCOME

Thank you for visiting the Alport Syndrome Foundation website. This site is designed for patients and families affected by Alport Syndrome, a genetic kidney disease. It is our goal to provide a central location for information about this disease, to create an opportunity to meet and talk to other families who are dealing with Alport Syndrome, and to support research aimed at curing the disease. read more

 

HEAR FROM THE EXPERTS

Presentations from the 2010 Alport Syndrome Symposium for Researchers, Physicians and Families in NY click here

Presentations from the 2012 Alport Syndrome Family Conference in MN  click here

Clinical practice recommendations for the treatment of people with Alport Syndrome  click here

 

VIDEOS & STORIES

NEW – ASF On CBS Radio – April 7, 2013 click here

ASF On Arizona Midday – March 14, 2013 click here

2012 Alport Syndrome Family Conference Video click here

The Alport Syndrome Story Video click here

Join our Family Stories  click here

 

 

ANNOUNCEMENTS

NEW – The Alport Syndrome Foundation, the Macquarie Foundation and the Kidney Foundation of Canada are pleased to announce that they have jointly awarded funding for two research projects on Alport Syndrome.  Read more

 ASF is pleased to announce the winners of the Paul Silver Tribute Award -  read more

Have you seen the latest ASF newsletter? click here

 

FUNDRAISING EVENTS

NEW – Create your own online fundraising page using our new online site click here

NEW - Purchase ASF necklaces and key chains from My Wildflower Jewelry and raise funds and awareness click here

 

HELP WITH RESEARCH

Dr. Laura Perin at Children’s Hospital Los Angeles, Saban Research Institute is working on research involving Amniotic Fluid Stem Cells and Alport Syndrome.  She is looking for pregnant women with a family history of Alport Syndrome who also plan to have amniocentesis performed and are willing to participate in her study.

 Click here to contact Dr. Perin for more information.

Help researchers learn more about AS. Join the Alport Syndrome Treatments and Outcomes Registry! click here