Announcements

Request for Research Proposals
ASF has announced the availability of funding for two $100,000 projects for basic science and clinical research on Alport Syndrome. Applications are due March 23, 2015.

New ASF Store
Help raise awareness and show your support for Alport Syndrome patients and families with a variety of ASF merchandise at the new ASF Store.

Annual Campaign
Thank you to all the ASF campaigners and donors who raised more than $100,000 for Alport Syndrome research during the 2014 Annual Campaign.

Alport Syndrome Clinical Study
A clinical study for Alport Syndrome patients is being conducted by Regulus Therapeutics. For more details, including international participating study sites, go to the study website.

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Events

Rare Disease Day
Get involved in this international advocacy day to recognize the challenges faced by patients and families affected by rare diseases.

Alport Awareness Month
Plan now to be part of the second annual Alport Awareness Month in March 2015!

Arizona 5K for Healthy Kidneys
Registration is now open for the annual Arizona 5K for Healthy Kidneys to be held on April 19.

Tom Denham's Charity Climb
Support Tom when he climbs Mt. Shuksan in honor of his daughter Rachel.

For more details about all upcoming events, go to Upcoming Events.

Stories and Videos

Family Stories
  • Todd’s Story odd Landsberg

    The first time I heard about Alport Syndrome was in the second grade when our family doctor told my parents I had the disease. Maybe being diagnosed with it early before I even understood anything about it was a blessing, since I really did not worry much about it.

    Yes, I wore hearing aids and was ...

  • John’s Story johns_romero

    John was diagnosed with Alport Syndrome when he was a baby. As is typical with many families affected by Alport Syndrome, John is not the only family member with the disease. Four other family members had received kidney transplants as a result of an Alport diagnosis.

    When John met Carolyn and they started dating, John told ...

  • Kyle’s Story kyle2a

    When I moved to Seattle, Washington, I was absolutely floored that I nailed an interview at a law firm as their office manager. My previous job had been as a manager at Petsmart so this new position was a great gig for somebody 25 years of age. My experience at the law firm was very ...