Announcements

Announcing Research Funding
ASF, the Pedersen Family, and the Kidney Foundation of Canada announce funding of two Alport Syndrome research projects. This funding was made possible by donations to the 2014 Annual Campaign for Healthy Kidneys.

ASF Launches New Blog!
ASF's new blog for patients was launched in May with several articles about women and Alport Syndrome.

Alport Syndrome Observational Study
A observational study for Alport Syndrome patients is being conducted by Regulus Therapeutics. For more details, including international participating study sites, go to the study website.

Check Out the ASF Store!
Help raise awareness and show your support for Alport Syndrome patients and families with a variety of ASF merchandise at the ASF Store.

Support patient fundraising, too!

Stay Updated!
Have you seen the latest ASF newsletter?
Be sure to register to receive the newsletter each month.

Events

Patient Gathering
If you live in the southern California area, join other patients and families for an informal potluck social on August 22.

Annual Campaign for
Healthy Kidneys

Help raise funds for Alport Syndrome research by being a campaigner during the Annual Campaign for Healthy Kidneys this fall!

Sibling Fundraising Competition
Sisters Tia and Jennifer are having a friendly competition to see who can raise the most on the same day. Participate in one of their events on October 3.

For more details about these events, go to Upcoming Events.

To read about recent events, like Tom Denham's 2015 Charity Climb or Music for McKenna, go to Past Events.

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Stories and Videos

Family Stories
  • Robbie’s Story

    I was born with Alport Syndrome. It runs on my mother’s side of the family. They knew when I was born that I most likely had the disease. I have two older brothers and they also have Alport Syndrome and my mother is a carrier. As far as cousins and other family members, none have it that we are aware...

Alport Syndrome Videos
Alport Syndrome Foundation
Alport Syndrome
Story of Alport Syndrome
Messages of Hope - Meet Kevin
Messages of Hope - Meet Jessi
Patient to Patient - John