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WELCOME

Thank you for visiting the Alport Syndrome Foundation website. This site is designed for patients and families affected by Alport Syndrome, a genetic kidney disease. It is our goal to provide a central location for information about this disease, to create an opportunity to meet and talk to other families who are dealing with Alport Syndrome, and to support research aimed at curing the disease. read more

New podcast on Alport Syndrome. Listen Now!

 

HEAR FROM THE EXPERTS

Long-term Management of Pediatric Alport Syndrome Patients click here

Presentations from the 2010 Alport Syndrome Symposium for Researchers, Physicians and Families in NY click here

Presentations from the 2012 Alport Syndrome Family Conference in MN  click here

Clinical practice recommendations for the treatment of people with Alport Syndrome¬† click here  

VIDEOS & STORIES

ASF On CBS Radio ‚Äď April 7, 2013 click here

ASF On Arizona Midday ‚Äď March 14, 2013 click here

2012 Alport Syndrome Family Conference Video click here

The Alport Syndrome Story Video click here

Join our Family Stories  click here

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Active Member of NORD

ANNOUNCEMENTS

NEW – ASF, Macquarie, Pedersen Family and KFOC select two $100,000 projects for research funding

The 2013 Annual Campaign was a great success, with over $100,000 raised for Alport Syndrome research.  ASF total fundraising has now exceeded $1 million! Thank you to all the campaigners and donors who made this possible.

2013 Paul Silver Tribute Award.  Read their essays here.

Have you seen the latest ASF newsletter? click here

 

FUNDRAISING & EVENTS

Create your own online fundraising page using our new online site click here

Purchase ASF necklaces and key chains from My Wildflower Jewelry and raise funds and awareness click here

Sell or shop on eBay and a portion of the sale benefits ASF. click here

 

HELP WITH RESEARCH

Help researchers learn more about AS. Join the Alport Syndrome Treatments and Outcomes Registry! click here

Click here to read about ASF-funded research projects.