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Welcome to the Alport Syndrome Foundation

Thank you for visiting the Alport Syndrome Foundation website. This site is designed for patients and families affected by Alport Syndrome, a genetic kidney disease. It is our goal to provide a central location for information about this disease, to create an opportunity to meet and talk to other families who are dealing with Alport Syndrome, and to support research aimed at curing the disease. read more

Have you seen the latest ASF newsletter? Click Here

Presentations from the Alport Syndrome Symposium for Researchers, Physicians and Families click here to view presentations

View ASF's latest "My Story" - David Williams

Announcements

Request for Research Proposals

Annual Campaign Recognition

NEW – Watch The Alport Syndrome Story Video

ASF Awards Research Funding to Dr. Laura Perin of the Saban Research Institute, Children’s Hospital Los Angeles…

Save the Date! Alport Syndrome Family Conference – ASF Family Conference to be held at the University of Minnesota, July 21–22, 2012. This conference will be specifically for families and will include programming for adults and teens, and social activities for the entire family. Please mark your calendars and look for more information in the coming months.