Announcements

2016 Request for Research Proposals
ASF announces availability of funding for two $100,000 research projects on Alport Syndrome.

Paul Silver Tribute Award Winners
Three young patients receive $1,000 each through the 2015 Paul Silver Tribute Award.

Support ASF While You Shop
Shop online at Amazon, Best Buy, Nike, and thousands of other stores and support ASF while you shop. Learn how!

Shop the ASF Store
Help raise awareness and show your support for Alport Syndrome patients and families with sweatshirts, t-shirts, mugs, key rings and other merchandise at the ASF Store.

Alport Syndrome Observational Study
A observational study for Alport Syndrome patients is being conducted by Regulus Therapeutics. For more details, including international participating study locations, go to the study website.

Join the Patient Registry
Be advised of new clinical studies and trials. Join today!

Stay Updated!
Have you seen the latest ASF newsletter?
Be sure to register to receive the newsletter each month.

Events

Rare Disease Day
Advocates around the world raise awareness of rare diseases on February 29, the rarest day of the year.

Alport Awareness Month
During National Kidney Month in March, help raise awareness of Alport Syndrome and kidney disease.

Arizona 5K for Healthy Kidneys
Register now for the annual Arizona 5K to be held in Tempe on Sunday, April 17.

Alport Family Meetings
ASF will host 2-day family meetings in three locations across the U.S. in 2016.

For more details about these and other events, go to Upcoming Events.

To read about recent events go to Past Events.

Subscribe to our blog

Stories and Videos

Family Stories
  • Robbie’s Story

    I was born with Alport Syndrome. It runs on my mother’s side of the family. They knew when I was born that I most likely had the disease. I have two older brothers and they also have Alport Syndrome and my mother is a carrier. As far as cousins and other family members, none have it that we are aware...

Alport Syndrome Videos
Alport Syndrome Foundation
Alport Syndrome
Story of Alport Syndrome
Messages of Hope - Meet Kevin
Messages of Hope - Meet Jessi
Patient to Patient - John