Support ASF While You Shop
Shop online at Amazon, Best Buy, Nike, and thousands of other stores and support ASF while you shop. Learn how!

Shop the ASF Store
Help raise awareness and show your support for Alport Syndrome patients and families with sweatshirts, t-shirts, mugs, key rings and other merchandise at the ASF Store.

Support Research Funding
Donate to the Annual Campaign for Healthy Kidneys through the end of the year and support Alport Syndrome research.

Alport Syndrome Observational Study
A observational study for Alport Syndrome patients is being conducted by Regulus Therapeutics. For more details, including international participating study sites, go to the study website.

Stay Updated!
Have you seen the latest ASF newsletter?
Be sure to register to receive the newsletter each month.


Annual Campaign for
Healthy Kidneys

Support Alport Syndrome research and the Annual Campaign for Healthy Kidneys with your year-end donations.

Rare Disease Day
Advocates around the world raise awareness of rare diseases on February 29, the rarest day of the year.

Alport Awareness Month
In March help raise awareness of Alport Syndrome and kidney disease.

For more details about these events, go to Upcoming Events.

To read about recent events, like Tere Martinez-Alvarez's soccer tournament or Tom Denham's 2015 Charity Climb, go to Past Events.

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Stories and Videos

Family Stories
  • Robbie’s Story

    I was born with Alport Syndrome. It runs on my mother’s side of the family. They knew when I was born that I most likely had the disease. I have two older brothers and they also have Alport Syndrome and my mother is a carrier. As far as cousins and other family members, none have it that we are aware...

Alport Syndrome Videos
Alport Syndrome Foundation
Alport Syndrome
Story of Alport Syndrome
Messages of Hope - Meet Kevin
Messages of Hope - Meet Jessi
Patient to Patient - John