The following resources are designed for physicians and researchers, but patients may find helpful information on the websites.

Alport syndrome Treatments and Outcomes Registry
The Alport syndrome Treatments and Outcomes Registry at the University of Minnesota is a voluntary international patient registry that enrolls families and patients with a history of Alport syndrome in a central registry.

American Society of Pediatric Nephrologists
The American Society of Pediatric Nephrologists is a site aimed at physician members, but also has a section for patient information and key Internet links that is quite useful.

American Society for Nephrology
The American Society of Nephrology focuses on scientific and educational goals to enhance the field of nephrology.

Center for Glomerular Disease
The Center for Glomerular Diseases at Columbia University fosters the advancement and study of glomerular diseases of the kidney. is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.

International Pediatric Nephrology Association
The International Pediatric Nephrology Association seeks to disseminate knowledge about kidney disease in children in the areas where care is needed most and includes nephrologists representing 89 countries.

International Society of Nephrology
The International Society of Nephrology is dedicated to advancing the diagnosis, treatment, and prevention of kidney disease.

GeneReviews are expert-authored, peer-reviewed disease descriptions (“chapters”) presented in a standardized format and focused on clinically relevant and medically actionable information on the diagnosis, management, and genetic counseling of patients and families with specific inherited conditions.

National Kidney and Urologic Disease Information Clearinghouse
The National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) is an information dissemination service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK).

PubMed is a free resource that comprises over 23 million citations for biomedical literature from MEDLINE, life science journals, and online books.

Renal Physicians Association
Renal Physicians Association is engaged in the practice of medicine, teaching and research of renal diseases.

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