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The Paul Silver Enrichment Award was created in memory of Paul Silver, an Alport syndrome patient. Paul was a film and music editor in Hollywood who passed away in 2004 at the age of 38. In 1985, Paul was the recipient of a similar award while studying film-making in college. Paul needed a camera to document his trip to Tuscany, Italy, where he was planning to attend a summer study program. He applied for, and won, an award that enabled him to purchase the necessary equipment to make a documentary film about his experiences in Italy and the benefits of this program for his school.

The Paul Silver Enrichment Award was designed to “pay it forward“ by helping other young people affected by Alport syndrome achieve one of their own goals. It can be used to complete a project or pursue an activity that will enhance the applicant’s life The award is open to individuals ages 16 to 22 years old living in the United States.

Click here to watch videos featuring prior winners discussing their Awards. Read about prior Paul Silver Enrichment Awardees below.

Paul Silver shares a moment with his sister, Sharon, in this undated, family photograph. Sharon’s extensive family history of Alport syndrome motivated her to co-found Alport Syndrome Foundation in 2007 to provide a haven of hope, action, and support for those facing this rare kidney disease. Since its creation over a decade ago, thousands of patients have benefited from Sharon’s desire to connect Alport syndrome patients and families.

The 2021 Award Cycle has ended.

Click here to read about the three 2021 Award Recipients.

Applicants are required to submit an essay answering the following questions:

  • How has Alport Syndrome impacted your life?
  • What are your extracurricular activities, hobbies and/or special interests?
  • What is the reason you wish to receive the award?
  • How will the award be used?
  • How will receipt of the award enhance your life/education?

The essay should be typed, double-spaced and no longer than 3 pages. It should be well-organized and state the applicant’s point of view clearly.

Award Application Guidelines

The following materials should be submitted with the essay:


  • Application form
  • Contact forms for applicant, healthcare provider, and teacher/school administrator
  • A photograph (a school photo or personal photo of applicant)
  • A letter of recommendation on official letterhead from a nephrology professional or a primary care doctor/pediatrician caring for the applicant who can discuss the applicant’s strengths, admirable qualities, and verify the applicant has an Alport Syndrome diagnosis. *This can be in the form of an email from a medical professional’s work/institutional email address.
  • A letter of recommendation on official letterhead from a teacher or administrator from applicant’s current academic institution who can discuss their strengths, admirable qualities, and any challenges the applicant has overcome or is currently facing. *This can be in the form of an email from the educator’s school/institutional email address.

Winners must agree to allow ASF to mention their name, give a testimonial and/or photograph in communications surrounding the award (including the website), and be willing to participate, where possible, in promotion of this award.

Within 6 months after receipt of the award, the recipient is required to provide both a brief written report and a short self-made video to ASF addressing:

  • How receipt of the award enhanced their life/education?
  • (and, if applicable) How receipt of the award enabled them to develop an interest or meet a goal that enhanced their life/education?

Note: The video will be used to inspire and encourage applications for the following year’s application cycle. Applicants are encouraged to use photos, videos and other supporting materials to demonstrate the impact of the award. Should a recipient not be able to use the award for the stated purpose they must contact ASF to discuss the issue, before deciding to use the monies for an alternate purpose.

2021 Winners

2020 Winners

2019 Winners

2018 Winner

2017 Winners

Mark, 18, plans to use his award to help fund his tuition. Cipolla, a well-traveled military kid, wants to pursue a degree and eventual career in rehabilitation services. While he admits Alport Syndrome has complicated his life, he’s determined to use the experience to support others struggling with disorders.

Read Mark’s Essay

Yara, 18, says the award announcement couldn’t have come at a better time. She applied shortly after her home was destroyed by Hurricane Harvey last August. She plans to put the money towards her biology education and has dreams of becoming a pediatric nephrologist.

Read Yara’s Essay

Norman, 21, has plans to earn his doctorate in clinical psychology before the age of 26. He hopes to give back to the community through institution work before undergoing his transplant.

Read Norman’s Essay

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