ALPORT CONNECT TOGETHER (ACT)
Crucial Patient/Caregiver, Physician, & Researcher Gatherings
BENEFITS OF ACT FAMILY WEEKENDS
- Meeting other families that relate to your experiences
- Understanding the latest research from leading experts
- Learning more about disease management, available resources, and how to self-advocate.
- Socializing and building bonds with families you will reach to for support over time
- May 2020 Update: Due to COVID-19, this year’s Family Meeting will now be virtual and open to the entire Alport Community.
Learn about the 2020 Virtual Family Meeting