The 2019 Alport Connect Together meeting hosted by the Cleveland Clinic – Cleveland, Ohio, May 4th & 5th.
We enjoyed a great weekend of connection and learning with 114 patients and/or family members from 18 states, including 19 participants in the Teen Program, and 10 participants in the Healthy Happy Kidney Program for 8-12 year olds. Thank you to our host, Dr. James Simon, and Cleveland Clinic.
Many thanks to our event sponsors:
Diamond Sponsor: – Reata Pharmaceuticals
Bronze Sponsors: – Retrophin and Sanofi Genzyme
We’ll keep everyone posted when the 2020 Alport Connect Together meeting date and location are confirmed.
“I would recommend attending the Alport Connect Together meeting because it’s good to know people who are going through the same thing you are. It was a lot of fun and easy to take in information.”
– Teen Program Participant, Cleveland 2019