The 2019 Alport Connect Together meeting is being hosted by the Cleveland Clinic – Cleveland, Ohio, May 4th & 5th.
Registration is now closed.
We have 120 people registered, including 19 teens! We look forward to a great weekend of connection and learning. Thank you to our host, Dr. James Simon, and Cleveland Clinic.
Many thanks to our event sponsors:
Diamond Sponsor: – Reata Pharmaceuticals
Bronze Sponsors: – Retrophin and Sanofi Genzyme
We’ll post photos on social media so check out ASF’s instagram, twitter, and FB page. We’ll also update our site with what we’ve learned in Cleveland. Thank you to everyone who is registered and plans to attend. We’ll keep everyone posted when the 2020 Alport Connect Together meeting date and location are confirmed.
“Go. Just go. Do whatever you can to attend, and bring the whole family. It was very helpful not only to my son, but also incredibly helpful for me and my husband as parents, and my other son who does not have Aport syndrome. It helped him understand what his brother is going through, and how to support him. It brought us closer as a family.”
– Mother of Alport syndrome patient 2017