Patient Perspectives

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text]Transplant patients are given drugs to suppress their immune system so that it will not attack and reject the donated organ. Unfortunately, immune-suppressed people, including recipients of kidneys and other organs, have a much higher risk of skin cancers

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text]I used to think that as a patient I had no power to effect change for my family and others with Alport syndrome – that we had to endure the recurring cycle of disease, generation after generation. I now know that we, as patients, play a pivotal role in changing the course of the disease and our actions will have a tremendous impact on our future.

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text] Many Alport syndrome females have been told they are “just a carrier” but they often find out years later this description is misleading.
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