Patient Perspectives

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text]Alport syndrome always affects the kidneys and sometimes affects the eyes. It also causes hearing loss in many patients. October is Hearing Loss Awareness Month, offering the perfect time to take a look at how Alport syndrome affects hearing.

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text]Transplant patients are given drugs to suppress their immune system so that it will not attack and reject the donated organ. Unfortunately, immune-suppressed people, including recipients of kidneys and other organs, have a much higher risk of skin cancers

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text]I used to think that as a patient I had no power to effect change for my family and others with Alport syndrome – that we had to endure the recurring cycle of disease, generation after generation. I now know that we, as patients, play a pivotal role in changing the course of the disease and our actions will have a tremendous impact on our future.

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text] Many Alport syndrome females have been told they are “just a carrier” but they often find out years later this description is misleading.
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