Events

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text]In response to requests for more face-to-face interaction with other families affected by Alport syndrome, ASF hosted several Alport Family Meetings in 2016, now known as Alport Connect Together (ACT) events. Participants left feeling empowered and connected to the Alport community.

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text]In the summer of 2016, Tom Denham faced his toughest challenge to date, the aptly named Forbidden Peak, as he continued his commitment to support ASF by climbing toward a cure on his annual charity climb in honor of his daughter, Rachel.

The Alport Family Meetings (AFM) provide a unique opportunity for members of our renal community to meet and mingle with other families affected by Alport syndrome and simultaneously learn from the experts. Shannon and her husband attended our Los Angeles event (AFMLA) along with their son,

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text]His bucket list includes climbing ten major mountains in ten years and raising $50,000 to help his daughter and others like her. "This is my idea of philanthropy!"
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