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ASF is pleased to offer the Paul Silver Tribute Award each year to young people in the Alport syndrome community. Winners are chosen based on several criteria, including the quality of their essay and the purpose and potential impact of the award. ASF is delighted to...

In 1927, Dr. Cecil Alport published a paper in the British Medical Journal in which he discussed his study of several generations of a family with what earlier physicians had called “hereditary familial congenital haemorrhagic nephritis." So how did this condition come to be named after Dr. Alport?

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text]A proper diet is crucial to maintaining proper renal and overall health. Potassium is a very important mineral in the body that most individuals are only vaguely aware of until their renal condition declines and are told by their doctor/dietitian to limit its intake.

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text]In response to requests for more face-to-face interaction with other families affected by Alport syndrome, ASF hosted several Alport Family Meetings in 2016, now known as Alport Connect Together (ACT) events. Participants left feeling empowered and connected to the Alport community.

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text]In the summer of 2016, Tom Denham faced his toughest challenge to date, the aptly named Forbidden Peak, as he continued his commitment to support ASF by climbing toward a cure on his annual charity climb in honor of his daughter, Rachel.

The Alport Family Meetings (AFM) provide a unique opportunity for members of our renal community to meet and mingle with other families affected by Alport syndrome and simultaneously learn from the experts. Shannon and her husband attended our Los Angeles event (AFMLA) along with their son,

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text]Registries are an important part of moving research in Alport syndrome forward. Dr. Michelle Rheault, the Co‐Director of the University of Minnesota’s Alport syndrome Treatment and Outcomes Registry (ASTOR) explains how registries work and why you should consider enrolling.

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text]Celina LaBrec-Salmons was the first person to register for the first-ever Alport syndrome Virtual Walk, which was held on June 18, 2016. This is a national event to raise funds and awareness by encouraging people to participate in their own communities.
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