Rare Disease Day, now celebrating its ninth consecutive year, occurs annually on the last day of February. On February 29, the rarest day of 2016, join ASF and countless others worldwide in raising awareness for the challenges faced by those living with these often-overlooked diseases.
The Alport syndrome Foundation works closely with other organizations to improve the lives of patients impacted by kidney diseases and rare diseases like Alport syndrome. Check out the exciting places we’ll be in the next few months!
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text]His bucket list includes climbing ten major mountains in ten years and raising $50,000 to help his daughter and others like her. "This is my idea of philanthropy!"
The Alport syndrome Foundation (ASF), the Pedersen Family and the Kidney Foundation of Canada (KFOC) are pleased to announce that they have jointly awarded research funding for two projects on Alport syndrome.