[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text]March 10, 2016 is World Kidney Day, a global awareness campaign to emphasize the importance of the two bean-shaped organs located in the back of our abdomens. The 2016 theme stresses the importance of early diagnosis and treatment of children with renal disease, a topic of particular interest to the Alport syndrome community.
Rare Disease Day, now celebrating its ninth consecutive year, occurs annually on the last day of February. On February 29, the rarest day of 2016, join ASF and countless others worldwide in raising awareness for the challenges faced by those living with these often-overlooked diseases.
There are many opportunities for patients and families to share their personal stories with legislators and influence decisions on proposed bills affecting individuals impacted by rare diseases like Alport syndrome.
The Alport syndrome Foundation works closely with other organizations to improve the lives of patients impacted by kidney diseases and rare diseases like Alport syndrome. Check out the exciting places we’ll be in the next few months!