Announcing Alport syndrome Research Funding

Announcing Alport syndrome Research Funding

 

The Alport syndrome Foundation (ASF), the Pedersen Family and the Kidney Foundation of Canada (KFOC) are pleased to announce that they have jointly awarded research funding for two projects on Alport syndrome.

Funding for these research studies comes from individual donations raised by families affected by the disease. For ASF, the success of the Annual Campaign for Healthy Kidneys has enabled us to partner with others to advance our shared vision of making Alport syndrome a treatable disease and finding a cure.

Thank you to all the campaigners and donors whose support makes funding research possible. ASF is also thankful for the partnership with the Pedersen Family and KFOC and their commitment to our shared vision.

The two projects selected this year include:

  • James Scholey of the University of Toronto (Ontario, Canada) was awarded $100,000 for a one-year study on Drug Repurposing for the Treatment of Experimental Alport syndrome. Click here to read Dr. Scholey’s full research abstract. 
  • Jeffrey Miner of Washington University (Missouri, USA) was awarded $76,500 for a one-year study on WISE Antibody as a Treatment for Alport syndrome. Click here to read Dr. Miner’s full research abstract.

ASF and its partners are monitoring the progress from these studies and past studies to identify the most promising paths to find better treatments and a cure for Alport syndrome.

ASF is also working with the international community (patient groups, clinicians, researchers) to coordinate efforts, identify key challenges, and build a research agenda that will lead to improving the lives of all Alport syndrome patients and families. Last year, ASF facilitated the funding of two additional research projects through international partnerships and is working to garner as many resources as possible to progress treatments for this rare kidney disease.

 

Additional Resources:
ASF Research Program
Annual Campaign for Healthy Kidneys

 



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