Research/Clinical Trials

Alport Syndrome Treatments and Outcomes Registry
www.med.umn.edu/peds/nephr/astor
The Department of Pediatrics at the University of Minnesota has established an international registry, under the direction of Dr. Clifford E. Kashtan, for the purpose of enabling patient recruitment for clinical natural history studies and therapeutic trials in children and adolescents with Alport Syndrome.

Alport Homepage
www.alport.de
This homepage is to inform patients and physicians about Alport Syndrome. The German research team led by Dr. Oliver Gross has put together this website to provide information on the history, current research, lectures and events on Alport Syndrome. In addition, information is provided on the European study on Alport Syndrome which is coordinated by Dr. Oliver Gross’ research team.

The Glomerular Disease Center at Columbia University
www.glomerularcenter.org
Dr. Gerald Appel, who is on the Alport Syndrome Foundation Medical Advisory Committee, is Co-Director of The Center for Glomerular Diseases at Columbia University. The Center was organized to foster the advancement and study of glomerular diseases of the kidney. It is a collaborative effort of members of the Divisions of Nephrology and Renal Pathology at Columbia University and is based at the Presbyterian Division of the New York Presbyterian Hospital.

Pub Med
www.ncbi.nlm.nih.gov
PubMed is a service of the U.S. National Library of Medicine that includes millions of citations from MEDLINE and other scientific journals for biomedical articles. This site has valuable information on past and current research and includes links to the full text articles and other related resources.

GeneReviews
www.genetests.org
This is the GeneTests Web site, a publicly funded medical genetics information resource developed for physicians, other healthcare providers, and researchers, available at no cost to all interested persons. GeneReviews is an online publication of expert-authored dies ease reviews.

ClinicalTrials.gov
www.clinicaltrials.gov
ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in human volunteers. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details. The information provided on ClinicalTrials.gov should be used in conjunction with advice from health care professionals.