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families dealing with Alport
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Transplant

California Pacific Medical Center
www.cpmc.org/kidney/
Outstanding resource for potential kidney transplant patients, regardless of where they plan to have a transplant.

Donate Life America
www.donatelife.net
Donate Life America is a not-for-profit alliance of national organizations and local coalitions across the United States dedicated to inspiring all people to save and enhance lives through organ, eye and tissue donation.

European Dialysis and Transplant Nurses Association - European Renal Care Association

www.edtnaerca.org

The European Dialysis and Transplant Nurses Association/European Renal Care Association (EDTNA/ERCA) was established in 1971 to address the special needs of nurses and other professionals that treat patients suffering from renal failure.

Mayo Clinic - Transplant Diagnosis and Treatment Information

www.mayoclinic.org/transplant

Mayo Clinic doctors perform more than 1,100 transplants a year, making it the largest transplant program in the United States. Mayo has transplant teams in Arizona, Florida, and Minnesota.

National Foundation for Transplants
www.transplants.org
The National Foundation for Transplants is dedicated to helping patients overcome financial hurdles in receiving a life-saving transplant, and the follow up treatment and medications essential to their continued health.

The Kidney Donation Process
www.kidneytransplant.org
This site is a University of Southern California (USC) web resource that provides information about the kidney donation process.

Transplant Living
www.transplantliving.org
Transplant Living is a project of the United Network for Organ Sharing (UNOS), a nonprofit organization that maintains the national Organ Procurement and Transplantation Network (OPTN) under contract with the Health Resources and Services Administration of the U.S. Department of Health and Human Services. A Pediatric section is provided.

United Network for Organ Sharing
www.unos.org
The United Network for Organ Sharing is the leader in the field of transplantation data and research. Their mission is to advance organ availability and transplantation by uniting and supporting its communities for the benefit of patients through education, technology and policy development.

Alliance for Paired Donation

www.paireddonation.org/index.htm

If you have a willing, but incompatible living donor, participation in a paired donation program can increase the chance that you will be able to receive a living donor kidney transplant. A large number of patients are enrolled in the paired donation registry from around the United States

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The 501(c)(3) non-profit Alport Syndrome Foundation is dedicated to educating and supporting patients and families with this genetic kidney disease.
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