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Support & Inspiration

Delphi Forums
www.forums.delphiforums.com
This website contains a forum that was originally developed at the University of Utah. When the University of Utah discontinued maintenance of the Alport Syndrome Home Page, the forum was migrated here to preserve the historical “chat” information that was part of that original website. The forum itself has discussions since 1998 between families affected by Alport Syndrome.

One of the goals of Alport Syndrome Foundation is to build on this historical support by providing a centralized place for information about Alport Syndrome and discussion among affected families.

Deseret News
www.deseretnews.com
This link recounts the amazing story of five donors swapping kidneys to accomplish five kidney transplants.

Kidney Patient's Guide
www.kidneypatientguide.org/uk

This site is a general health and medical resource.

Renal Support Network
www.rsnhope.org
The Renal Support Network is an organization that provides non-medical services to those affected by chronic kidney disease. RSN strives to help patients develop their personal coping skills, special talents, and employability by educating and empowering them (and their family members) to take control of the course and management of their disease.

John F. Martin Website
www.johnfmartin.net
This site chronicles a photojournalist’s journey from diagnosis of Alport’s Syndrome through dialysis and transplant. The site contains many graphic photos of medical procedures and it is not suitable for all ages.

Shad Ireland Website
www.shadireland.com
An inspirational site about the first known dialysis patient to compete in an IronMan Triathlon.

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