<< Back to Links Page

Other Links

Genetic Alliance
www.geneticalliance.org
Genetic Alliance increases the capacity of genetic advocacy organizations to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions.

Genetic Testing
www.genetests.org
This site provides laboratories that are performing genetic testing for Alport Syndrome.

National Organization of Rare Diseases
www.rarediseases.org
The National Organization for Rare Disorders (NORD), a 501(c) 3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

University of Utah, Alport Syndrome Website
http://home.utah.edu
This site was originally written by Dr. Curtis Atkin in 1996. It was the first website to give the every day person information about Alport Syndrome. While many of the links are now out of date, this site contains a wealth of information about Alport Syndrome.

University of Utah, Hereditary Nephritis Foundation
www.cc.utah.edu
The website for the Hereditary Nephritis Foundation. The HNF is no longer functioning, but there is good information still available on this site about Alport Syndrome.