WELCOME!

Thank you for visiting the Alport Syndrome Foundation website. This site is designed for patients and families affected by Alport Syndrome, a genetic kidney disease. It is our goal to provide a central location for information about this disease, to create an opportunity to meet and talk to other families who are dealing with Alport Syndrome, and to ultimately support research aimed at curing the disease.

What Is Alport Syndrome?
Alport Syndrome is an inherited disease of the kidney, which can also affect the inner ear and eye. It is estimated to effect at least 1 in 5,000 people. It is caused by genetic defects in the type IV collagen family of proteins, which cause the filtering units of the kidney to deteriorate over time. See About Alport Syndrome for more information on the types, causes, and treatment for this disease.

Who Are We?
The Alport Syndrome Foundation is an organization formed in 2007 by families affected by this disease. We are a non-profit corporation but are essentially a group of concerned families and friends that found it difficult to locate concise, useful and easy to understand information about this disease on the web. We recognize that there is a lot of information available, but it is often technical, confusing, and overwhelming - especially to those who are newly diagnosed.

We hope that you find this website useful and informative. We welcome your comments and suggestions, and greatly appreciate your support!