The Alport Syndrome Foundation is an all-volunteer nonprofit and those like you, who are willing and able to give so generously of their time, are the heartbeat of ASF.
To fulfill our mission to find treatments (and one day a cure) for Alport Syndrome, we need to continue to raise additional funds.
If you are interested in becoming a fundraising partner or have an idea for a fundraiser, please email us at firstname.lastname@example.org.
Become a fundraising partner!
|Organize an event in your area or dedicate your fundraising effort to Alport Syndrome awareness and research! The Internet has some great ideas for fundraising activities.
Using our new online fundraising site you can create a personal fundraising page and use social media and e-mail to invite friends and family to get involved. Use our templates or create your own messages.
Purchasing Necklaces and Key Chains from My Wildflower Supports ASF
|In honor of a young friend who has Alport Syndrome, My Wildflower Jewelry is helping raise awareness through three new additions to their online store. Necklaces and key chains can be personalized. Net proceeds from the sale of these items are given to ASF.|
Raise money for ASF through your eBay sales
ASF is pleased to announce that through the eBay Giving Works program sellers can now donate a portion of their sales to ASF. Buyers can also support ASF when they shop from these sellers. Check out the ASF eBay listings today. Be sure to check back regularly to see any new items.
Identify Corporate Partners
|Corporate matching gifts are a great way to maximize personal contributions to the Alport Syndrome Foundation and increase the impact of your gift. By taking advantage of a company’s matching gift benefit, you may be able to double or even triple the amount of your contribution and those of your co-workers.
Sometimes companies will match participant donations for an event or make a donation as a sponsor, as well. Talk to your employer or other corporations in your area about how they can help with your event or become a national sponsor for ASF. Event sponsor logos are typically included in all our event advertising.
For assistance with matching gift or sponsorship paperwork, please contact Sharon Lagas.
Arizona 5K For Healthy Kidneys
|Please join us again for the Arizona 5K for Healthy Kidneys on Sunday, March 30th, at Kiwanis Park in Tempe, AZ. Mark your calendars for this annual event to support education and awareness.
Can’t attend the 5K? Hold a Virtual Walk in your area!
Alport Syndrome Awareness Month
National Alport Syndrome Awareness Month
March 2014 will be the first ever Alport Awareness Month. This is a time for Alport Syndrome families everywhere to raise awareness in their local communities during National Kidney Month, which occurs annually in March throughout the USA.
Make plans now to do something during March 2014! Click here for ideas on ways YOU can raise awareness.
Contact email@example.com for help planning your event or to request brochures and other materials for your event.
Tom Denham’s Mt. Baker Climb
|Mountain climber Tom Denham has pledged to participate in an annual charity climb for ASF. In the past two years, Tom has hiked Devil’s Tower and Half Dome and raised over $10,000 to benefit Alport Syndrome patients like his 14-year-old daughter Rachel.
In June, Tom will ascend Mt. Baker in the Northern Cascades of Washington state. The dormant volcano is covered in glaciers, snow and ice, making this an unforgettable and dramatic alpine climb. You can make a donation in honor of Tom’s climb here
Paul Naquin Tribute
|In September 2013, Jonathan Naquin (18) and his brother Christopher (16) were both diagnosed with Alport Syndrome. At the time, Jonathan was preparing to meet with a transplant team. One month later, Jonathan and Christopher lost their grandfather, Paul Naquin, to complications of surgery. The family wanted to support a charity that meant a lot to Paul and chose ASF because of the family’s recent focus on Alport Syndrome. They invited family and friends to make donations to ASF in Paul’s memory and have raised $2,700! Jonathan and Christopher’s mother, Carol, said, “We are so thrilled that, through something so tragic as the loss of a loved one, something positive like this can help us heal and the donations will help others.”
Thank you to the Naquins and their many friends and family who donated so generously to ASF in Paul’s memory.
HOSA 5K Event
|Nearly 40 participants and dozens of volunteers turned out for the HOSA 5K at Desert Vista High School on November 16. HOSA is the club for students interested in careers in medicine. Students chose to dedicate the event to ASF in honor of classmates Joe and Max Lagas, who have Alport Syndrome. Joe and his mother, ASF president Sharon Lagas, both spoke and shared their stories during the race kickoff.
The event raised nearly $700. Thank you to the HOSA students and volunteers who worked so hard to make this event happen!
REM Memorial – San Diego
|Nearly 50 people attended Allie Miller’s birthday fundraiser on November 3 in memory of her father and brother, Robert Miller, Jr. and Robert Miller, III. Over $1100 was raised in their names over football and pizza, two of their favorite things. Thank you, Allie!|
Benefit Dinner for Kevin Schnurr
Kevin Schnurr’s benefit on July 12th at O’Brien’s Ale House in Coram, NY was a success in raising awareness of Alport Syndrome, organ donation, and funds for ASF. Kevin raised almost $2,500 in donations! Kevin was shocked to learn the number of people who approached him at the benefit to tell him they knew someone on dialysis. This has inspired him to continue raising awareness for those with renal failure. Guests enjoyed great Irish food, home baked goods and sang along to songs performed by Kevin and his friends. Thank you Kevin!
Fat Ass 5K & Street Party for Charity
The annual Fat Ass 5K & Street Party for Charity was held in Springfield, IL, on May 11 and $15,000 was donated to ASF! The Fat Ass 5K & Street Party for Charity has donated $51,000 to ASF since 2010! If you want to join the event, please check their website for next year’s race details. Thank you to all the organizers and participants of the Fat Ass 5K & Street Party for Charity for your support of ASF!
Tom Denham’s Half Dome Hike
|Tom Denham successfully completed his Half Dome climb in June. His climb was in honor of his daughter Rachel, who has Alport Syndrome. Tom also exceeded his goal of $5,000 raised for ASF.
Tom has pledged to raise $50,000 for ASF over a 10-year period by completing one climb per year. Stay tuned in January for the announcement of Tom’s 2014 charity climb location. Thank you, Tom, for all you do for ASF!
Arizona 5K for Healthy Kidneys
|On March 24, ASF hosted the 6th annual Arizona 5K for Healthy Kidneys. Approximately 300 people turned out to participate in this run/walk event and enjoy the beautiful spring weather, raising over $35,000 for education, awareness and outreach.
The event included door prize raffles and a separate drawing for an iPad. Individuals are entered in the iPad drawing for every $100 they donate or fundraise. The winner of the drawing held on April 15 was Dawn Matesi, who was also the first runner in her age bracket to cross the finish line.
Arizona Gives Day
|On March 20, Arizona nonprofits came together to raise awareness of the work they do for the community and to raise funds to continue their work. The event helped raise awareness of Alport Syndrome and the Foundation, and raised $800.
We appreciate everyone who took part in this event.
|Arizona State Farm agent Dave Jackson dedicated February 2013 to the Alport Syndrome Foundation. For every “like” on his Facebook page, Dave donated $1 to ASF. Thanks to our many members and supporters, we raised $391!
Thank you for your support and a great big thank you to Dave Jackson for his generosity!
|On January 24, 2013, the PGA National Resort and Spa in Palm Beach Gardens, Florida, hosted its monthly Girls’ Night Out event. Each month a different charity is featured. Through the efforts of Rachelle Litt, whose children have Alport Syndrome, January’s charity was the Alport Syndrome Foundation!
The event included clothing, jewelry and art vendors, a psychic, music by a local radio personality, along with great food and drinks, and a raffle for ASF that raised $850.
Thank you to Rachelle for her efforts on behalf of ASF.
|On January 24-25, 2013, St John’s Lambs Lot Preschool held a Pajama Day for all preschool classes. Over these two days, some 139 students were allowed to wear their pajamas to school on the day their class was assigned in exchange for a $1 (or more) donation towards the Alport Syndrome Foundation.
ASF member Joy Toal’s son is a student at the school and participated quite happily; it’s not hard to convince a young child to wear their PJs to school! Each family received a friendly reminder with a brochure about the Alport Syndrome Foundation to help spread awareness of this rare disease. In the end, all those jammies raised over $230 for the ASF.
Thank you, Lambs Lot!
|Casual dress day at work is a favorite with employees everywhere — including with the staff at the New York State United Teachers (NYSUT). So when NYSUT’s Employee Outreach Network (NEON) offered their members a chance to dress down for the day in exchange for a donation to ASF, they collected nearly $600.
Thank you to NYSUT, NEON and their generous members!