The Alport Syndrome Foundation is an all-volunteer nonprofit and those like you, who are willing and able to give so generously of their time, are the heartbeat of ASF.
To fulfill our mission to find treatments (and one day a cure) for Alport Syndrome, we need to continue to raise additional funds.
Become a fundraising partner!
|Organize an event in your area or dedicate your fundraising effort to Alport Syndrome awareness and research! The Internet has some great ideas for fundraising activities – click here
Using our new online fundraising site you can create a personal fundraising page and use social media and e-mail to invite friends and family to get involved. Use our templates or create your own messages.
Purchasing Necklaces and Key Chains from My Wildflower Supports ASF
|In honor of a young friend who has Alport Syndrome, My Wildflower Jewelry is helping raise awareness through three new additions to their online store. Necklaces and key chains can be personalized. Net proceeds from the sale of these items are given to ASF.
Identify Corporate Partners
|Corporate matching gifts are a great way to maximize personal contributions to the Alport Syndrome Foundation and increase the impact of your gift. By taking advantage of a company’s matching gift benefit, you may be able to double or even triple the amount of your contribution and those of your co-workers.
Sometimes companies will match participant donations for an event or make a donation as a sponsor, as well. Talk to your employer or other corporations in your area about how they can help with your event or become a national sponsor for ASF. Event sponsor logos are typically included in all our event advertising.
For assistance with matching gift or sponsorship paperwork, please contact Sharon Lagas.
|ASF members can support the Fat Ass 5K & Street Party for Charity by volunteering or participating in this fun event on May 11th in historic downtown Springfield, IL. The Fat Ass 5K & Street Party for Charity has donated over $36,000 to ASF since 2010! Please go to www.fatass5k.com to join the fun.|
|In May, Joe Ogonowski will participate in a motorcycle ride from Florida to New Jersey. He is dedicating his ride to Alport Syndrome and donor awareness. Joe has Alport Syndrome and received a transplant several years ago.
You can donate to Joe’s ride and help spread the word about Alport Syndrome.
|Avid mountain climber Tom Denham has pledged to raise $50,000 for ASF by doing a charity climb for ten years. Tom has been climbing mountains for more than 30 years and has climbed over 190 mountains. He raised $5,000 last summer when he hiked Devil’s Tower.
This year Tom will join a team that will scale the legendary Half Dome in Yosemite National Park in California. His trek will involve a 16 mile round trip strenuous hike in addition to the actual rock climbing. Tom’s efforts are on behalf of his daughter, Rachel, who is an Alport patient. You can make a donation in honor of Tom’s climb here.
|On March 24, ASF hosted the 6th annual Arizona 5K for Healthy Kidneys. Approximately 300 people turned out to participate in this run/walk event and enjoy the beautiful spring weather, raising over $35,000 for education, awareness and outreach.
The event included door prize raffles and a separate drawing for an iPad. Individuals are entered in the iPad drawing for every $100 they donate or fundraise. The winner of the drawing held on April 15 was Dawn Matesi, who was also the first runner in her age bracket to cross the finish line.
|On March 20, Arizona nonprofits came together to raise awareness of the work they do for the community and to raise funds to continue their work. The event helped raise awareness of Alport Syndrome and the Foundation, and raised $800.
We appreciate everyone who took part in this event.
|Arizona State Farm agent Dave Jackson dedicated February 2013 to the Alport Syndrome Foundation. For every “like” on his Facebook page, Dave donated $1 to ASF. Thanks to our many members and supporters, we raised $391!
Thank you for your support and a great big thank you to Dave Jackson for his generosity!
|On January 24, 2013, the PGA National Resort and Spa in Palm Beach Gardens, Florida, hosted its monthly Girls’ Night Out event. Each month a different charity is featured. Through the efforts of Rachelle Litt, whose children have Alport Syndrome, January’s charity was the Alport Syndrome Foundation!
The event included clothing, jewelry and art vendors, a psychic, music by a local radio personality, along with great food and drinks, and a raffle for ASF that raised $850.
Thank you to Rachelle for her efforts on behalf of ASF.
|On January 24-25, 2013, St John’s Lambs Lot Preschool held a Pajama Day for all preschool classes. Over these two days, some 139 students were allowed to wear their pajamas to school on the day their class was assigned in exchange for a $1 (or more) donation towards the Alport Syndrome Foundation.
ASF member Joy Toal’s son is a student at the school and participated quite happily; it’s not hard to convince a young child to wear their PJs to school! Each family received a friendly reminder with a brochure about the Alport Syndrome Foundation to help spread awareness of this rare disease. In the end, all those jammies raised over $230 for the ASF.
Thank you, Lambs Lot!
|Casual dress day at work is a favorite with employees everywhere — including with the staff at the New York State United Teachers (NYSUT). So when NYSUT’s Employee Outreach Network (NEON) offered their members a chance to dress down for the day in exchange for a donation to ASF, they collected nearly $600.
Thank you to NYSUT, NEON and their generous members!