Thank you for visiting the Alport Syndrome Foundation website. This site is designed for patients and families affected by Alport Syndrome, a genetic kidney disease. It is our goal to provide a central location for information about this disease, to create an opportunity to meet and talk to other families who are dealing with Alport Syndrome, and to support research aimed at curing the disease. read more
HEAR FROM THE EXPERTS
Long-term Management of Pediatric Alport Syndrome Patients click here
Presentations from the 2010 Alport Syndrome Symposium for Researchers, Physicians and Families in NY click here
Presentations from the 2012 Alport Syndrome Family Conference in MNÂ Â click here
Clinical practice recommendations for the treatment of people with Alport SyndromeÂ click here
VIDEOS & STORIES
ASF On CBS Radio â€“ April 7, 2013 click here
ASF On Arizona Midday â€“ March 14, 2013 click here
2012 Alport Syndrome Family Conference VideoÂ click here
The Alport Syndrome Story VideoÂ click here
Join our Family StoriesÂ click here
NEWÂ â€“Â The 2013 Annual Campaign was a great success, with over $100,000 raised for Alport Syndrome research.Â ASF total fundraising has now exceeded $1 million!
The Alport Syndrome Foundation, the Macquarie Foundation and the Kidney Foundation of Canada are pleased to announce that they have jointly awarded funding for two research projects on Alport Syndrome.Â Read more
Have you seen the latest ASF newsletter? click here
NEW â€“ March will be the first ever Alport Awareness Month, a time for Alport Syndrome families to raise awareness in their local communities during National Kidney Month.Â click here
NEW â€“ Join us for the 7th Annual Arizona 5K for Healthy Kidneys on Sunday, March 30! click here
Create your own online fundraising page using our new online site click here
Purchase ASF necklaces and key chains from My Wildflower Jewelry and raise funds and awareness click here
Sell or shop on eBay and a portion of the sale benefits ASF. click here
HELP WITH RESEARCH
Dr. Laura Perin at Childrenâ€™s Hospital Los Angeles, Saban Research Institute is working on research involving Amniotic Fluid Stem Cells and Alport Syndrome.Â She is looking for pregnant women with a family history of Alport Syndrome who also plan to have amniocentesis performed and are willing to participate in her study.
Â Click here to contact Dr. Perin for more information.
Help researchers learn more about AS. Join the Alport Syndrome Treatments and Outcomes Registry! click here