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WELCOME

Thank you for visiting the Alport Syndrome Foundation website. This site is designed for patients and families affected by Alport Syndrome, a genetic kidney disease. It is our goal to provide a central location for information about this disease, to create an opportunity to meet and talk to other families who are dealing with Alport Syndrome, and to support research aimed at curing the disease. read more

New podcast on Alport Syndrome. Listen Now!

 

HEAR FROM THE EXPERTS

Long-term Management of Pediatric Alport Syndrome Patients click here

Presentations from the 2010 Alport Syndrome Symposium for Researchers, Physicians and Families in NY click here

Presentations from the 2012 Alport Syndrome Family Conference in MN  click here

Clinical practice recommendations for the treatment of people with Alport Syndrome  click here  

VIDEOS & STORIES

ASF On CBS Radio – April 7, 2013 click here

ASF On Arizona Midday – March 14, 2013 click here

2012 Alport Syndrome Family Conference Video click here

The Alport Syndrome Story Video click here

Join our Family Stories  click here

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Active Member of NORD

ANNOUNCEMENTS


Annual Campaign
Join the 2014 Annual Campaign for Healthy Kidneys now by emailing Marci Panella for information on how to become a campaigner. The Annual Campaign will begin September 15 and continue through October 24.

Paul Silver Tribute Award
Applications are being accepted for the 2014 Paul Silver Tribute Award. Patients ages 16-22 may apply for awards up to a $1,000. Applications and further details are available at Paul Silver Tribute Award.

ASF Research Funding
ASF, Macquarie, Pedersen Family and KFOC select two $100,000 projects for research funding

Stay Updated!
Have you seen the latest ASF newsletter? click here
Be sure to register to receive the newsletter each month by contacting ASFNews@alportsyndrome.org
 

FUNDRAISING & EVENTS

Create your own online fundraising page using our online site click here

  • Augusta Ironman 70.3 – September 28 in Augusta, GA
  • Big John’s Icehouse – October 25 in Houston, TX
  • Broccolini 5K and 1 Mile Fun Run – October 26 in Phoenix, AZ
  • Philadelphia Patient Meeting – November 15 in Philadelphia, PA


For more details about these events, go to Upcoming Fundraisers.

Check out our Fundraising & Events page for other ways to help ASF.

 

HELP WITH RESEARCH

Help researchers learn more about AS. Join the Alport Syndrome Treatments and Outcomes Registry! click here

Click here to read about ASF-funded research projects.