ASF Announcements

Barehanded Books is Raising Money for Alport Syndrome

Barehanded Books is offering their book First Person Last by Kevin M. Lottes for any donation of $10 or more with 100% of the proceeds benefiting the Alport Syndrome Foundation. Cameron - the boy seen on the cover of First Person Last is an Alport Syndrome patient and the author's "buddy".

First Person Last is taut, lyrical collection of stories that signify the author's personal dream of individual peace, family appeasement, emotional articulation, and release. In First Person Last a young man confronts his estranged father in one last attempt at reconciliation. A desperate woman is lost behind a shower curtain. A little boy struggles to understand the quiet complications of war through his veteran grandfather. An ordinary man tries to cross the street, but the sudden burst of civilization petrifies his entrance into the uncertainty of a mundane cross walk.

To order your copy of First Person Last and support the Alport Syndrome Foundation just make a donation of $10 or more and indicate on your donation that you would like a copy of First Person Last sent to you. Donate Now for your free copy of First Person Last

1st Annual Alport Syndrome 5K for Healthy Kidneys is a Success!

The 1st Annual Alport Syndrome 5K for Healthy Kidneys was held on Sunday, April 13, 2008 at Kiwanis Community Park in Tempe, AZ. We had 284 race participants and raised $40,000!

Thank you to all of you who supported our event and helped us make it successful.

The top three runners and their times were:

Tim Lee 18:26

Robert Walgreen 19:01

Rene Gutierrez Soto 20:36.

The top fundraisers were (excluding Board members):

Joyce Silver $8,707

Pam Pedersen $3,875

Lisa Silver $1,679

Dottie DiMouro $1,580.

We also have to thank our sponsors and participating organizations:

Brown and Caldwell

Allied Waste

Sole Sports

Desert Practice Management

Power Crunch

State Farm Insurance

2.0s

Alport Syndrome Treatments and Outcomes Registry

Nephrology News & Issues

Alphagraphics

GordonGraphics, Inc.

Coca Cola

Albertsons.

Last but not least we must thank all the volunteers who helped with this event. There are too many to list everyone but without your help we could not have made this event a success. A special thank you goes to two volunteers who assisted us every step along the way - Deb and Dave Grisa. We cannot thank you enough!

To view photographs of the 5K please click here. Additional photos are available by clicking on this link.

We are putting together a manual and will provide support to anyone who wants to coordinate a 5K event in their community. Please email slagas@alportsyndrome.org for more information.

Thank you again!