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You are not alone, read words of
encouragement and hope from
families dealing with Alport
Syndrome. Read Here

Foundation News

The Board of Directors of the Alport Syndrome Foundation (ASF) are very excited to be presenting this web site to the AS community. We began working together in August of 2006 to create the Foundation and develop the web site. We have been granted tax-exempt status from the IRS and are an approved 501(c)(3) organization.

It is our hope that the Foundation will grow and flourish to meet the needs of Alport Syndrome patients and families. We also hope that the Foundation will get the attention of the medical community so more resources can be directed towards research on finding more effective treatment protocols and eventually a cure for Alport Syndrome.

Please continue on in this section to read:

The 501(c)(3) non-profit Alport Syndrome Foundation is dedicated to educating and supporting patients and families with this genetic kidney disease.
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