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Forum
This Forum has been created for Alport families to help and support each other. This Forum provides an avenue for our community to ask questions and draw upon the experiences of other members that have been dealing with Alport Syndrome.
One of the goals of the Alport Syndrome Foundation is to build on the historical support of the University of Utah and provide a centralized location for information on this disease and a place for communication among affected families. In 1998 Dr. Curtis Atkin began “The Alport Forum” on Delphi Forums. His intent was to provide a space where individuals affected by Alport Syndrome could connect and ask questions. At that time there was very little information available to the public. Those in the medical profession had resources available, but few of the rest of us could read them. The Alport Forum was to bridge that gap. It is our hope that the discussion about Alport Syndrome can be continued here.
It is very simple to post a question on the Forum or to search for a topic. Personal information may be made public or kept private – it is your decision.
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