| Family Stories
The Alport Syndrome Foundation was founded by families affected by genetic kidney disease. Two of these families have been dealing with Alport Syndrome for several generations: Sharon’s Family and Vint’s Family. They wanted to share their experience with others dealing with Alport Syndrome in order to provide these families the support and connection they need. By sharing their stories, they hope to create a caring and strong community dedicated to the education, communication, treatment and cure for Alport Syndrome.
Every story counts – whether you are a person with the disease, a family member, friend, researcher, healthcare professional, advocate or volunteer. If you would like to share your story online you need to be a registered member of this site (see Register). Please contact info@alportsyndrome.org for information on posting your story.
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