Connect with Others

Please join the Alport Syndrome Community on our Forum, our Facebook page, or consider sharing your Family Story. This will allow you to connect with other patients and families for support, inspiration, information, and to share experiences. Being a part of the Alport Syndrome Community is so important to reduce the feelings of distress, isolation and uncertainty that can come from living with Alport Syndrome.

The power of your words can have an important impact for many others. Share your thoughts and experiences.  Help us create a strong and caring Alport Syndrome Community.

“No man is an island, entire of itself…”

-John Donne