New York Announcement Letter

Alport Syndrome Symposium for Physicians, Researchers, and Families
New York Hilton Hotel, New York City
August 28, 2010

Dear Patients, Families and Friends,

You are invited to join us for the first symposium on Alport Syndrome for families, physicians, and researchers to be held in over a decade. The one-day Symposium is free of charge and will take place on August 28, 2010 from 8:00 AM to 5:00 PM, in conjunction with the 15th Congress of the International Pediatric Nephrology Association (IPNA), at the New York Hilton Hotel in New York City. Please click on the links below to register, get information on traveling to the symposium and for a description of the program content.

The Symposium is a joint effort of the Alport Syndrome Foundation (ASF) and the Alport Syndrome Treatments and Outcomes Registry (ASTOR), located at the University of Minnesota. This activity is supported by an educational donation provided by Amgen and Athena Diagnostics.

We look forward to seeing you in New York!

Sincerely, 

Sharon Lagas, President
Vint DeGraw, Vice President
Stan Silver, Treasurer
Margaret Blue, Secretary
Mike Panella, Board Member

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Travel and Accommodation Information

  • Discount on American Airlines
    Book online at www.aa.com and use Promotion Code: 8280AJ to receive 5% discount on air travel from August 22 – September 4, 2010
  • Discount on Rental Avis Rent a Car
    Use Avis Worldwide Discount AWD: G027999
    Reservations should be made by calling Avis directly at (888) 754-8878 or by using this link: CLICK HERE

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    Lodging Accommodations:

    • Symposium Hotel
      Hilton New York
      1335 Avenue of the Americas, New York, NY 10019-6078

      Hotel rooms are being held for IPNA Congress Attendees at a special rate of $213 USD single/double occupancy (plus state and local taxes, currently 14.75% per room per night with a $3.50 USD occupancy tax per room per night). The deadline to make a hotel reservation is Tuesday, July 27, 2010. Any reservation made after this date will be based upon a space and rate availability basis.

      Hotel reservations can be made by contacting the Hilton New York:

      Telephone: (800)-445-8667 or (800)-445-8667 Reference “International Pediatric Nephrology Association”
      Online: http://www.hilton.com/en/hi/groups/personalized/NYCNHHH-IPNA-20100827/index.jhtml

      General Hotel Reservation Information:

      • A first night, non-refundable, room deposit will be charged upon making your reservation.
      • Should you cancel your reservation up to 72 hours prior to your arrival date; you will receive back your entire first night room deposit.
      • Checks and major credit cards are acceptable to establish payment.
      • Hotel Check-In is 3:00 PM; Hotel Check-Out is 12:00 PM
      • Hotel and all guest rooms are smoke free.
      • There are no twin bed guest rooms available.
      • 4 person maximum in each guest room.
      • Breakfast is not included in the room rate.

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    Alternative Hotels in New York (0.7 mi from Hilton, less than 15 min walk)

    • Residence Inn by Marriott Times Square
      1033 Avenue of the Americas (38th and 39th Streets) New York, NY 10018

      Hotel rooms are being held for Alport Syndrome Symposium Attendees at a special rate of $189 USD single/double occupancy (plus state and local taxes, currently 14.75% per room per night with a $3.50 USD occupancy tax per room per night) for the dates of Friday and Saturday, August 27 – 28, 2010. The deadline to make a hotel reservation is Wednesday, July 28th, 2010. Any reservation made after this date will be based upon a space and rate availability basis.

      Hotel reservations can be made by contacting the Marriott Times Square and using the following Group Code Numbers ALSALSA (Studio w/King-size bed) or ALSALSB (Studio w/Queen-size bed):

      Telephone: (800)-331-3131
      Online: https://www.marriott.com/reservation/availability.mi?propertyCode=nycri&gc

      General Hotel Reservation Information:

      • A first night, non-refundable, room deposit will be charged upon making your reservation.
      • Checks and major credit cards are acceptable to establish payment.
      • Hotel Check-In is 4:00 PM; Hotel Check-Out is 11:00 PM
      • Hotel and all guest rooms are smoke free.
      • There are no twin bed guest rooms available.
      • Buffet breakfast and Internet are included in the room rate.
      • Airport shuttles available for fee see hotel website above.
      • Parking is $56 per day, plus $10 for oversize vehicles.
    • Courtyard by Marriott Times Square South
      114 West 40th Street (Broadway and 6th Avenue) New York, NY 10018

      Hotel rooms are being held for Alport Syndrome Symposium Attendees at a special rate of $179 USD single/double occupancy (plus state and local taxes, currently 14.75% per room per night with a $3.50 USD occupancy tax per room per night) for the dates of Friday and Saturday, August 27 – 28, 2010. The deadline to make a hotel reservation is Wednesday, July 28th, 2010. Any reservation made after this date will be based upon a space and rate availability basis.

      Hotel reservations can be made by contacting the Marriott Times Square and using the following Group Code Numbers ALSALSA (Room w/King-size bed) or ALSALSB (Room w/2 Double beds):

      Telephone: (800)-321-2211
      Online: https://www.marriott.com/reservation/availability.mi?propertyCode=nycmd&gc General

      Hotel Reservation Information:

      • A first night, non-refundable, room deposit will be charged upon making your reservation.
      • Checks and major credit cards are acceptable to establish payment.
      • Hotel Check-In is 3:00 PM; Hotel Check-Out is 12:00 PM
      • Hotel and all guest rooms are smoke free.
      • There are no Twin Bed guest rooms available.
      • Internet is included in the room rate.
      • Airport shuttles available for fee see hotel website above.
      • Parking is $52 per day, plus $10 for oversize vehicles.

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    Alternative Hotel in New Jersey (7 mi to NYC)

    • Fairfield Inn by Marriott East Rutherford Meadowlands
      850 Paterson Plank Road East Rutherford, NJ 07073

      Hotel rooms are being held for Alport Syndrome Symposium Attendees at a special rate of $94 Double beds/$84 King bed (plus state and local taxes, currently 15% per room per night) for the dates of Friday and Saturday, August 27 – 28, 2010. The deadline to make a hotel reservation is Friday, August 6th, 2010. Any reservation made after this date will be based upon a space and rate availability basis.

      Hotel reservations can be made by contacting the Fairfield Inn and identifying the reservation as the Alport Syndrome Foundation group

      Telephone: 1-(800)-MARRIOTT
      Online: http://www.marriott.com/hotels/travel/ewrsc-fairfield-inn-rutherford-meadowlands/ 

      General Hotel Reservation Information:

      • A first night, non-refundable, room deposit will be charged upon making your reservation.
      • Checks and major credit cards are acceptable to establish payment.
      • Hotel Check-In is 3:00 PM; Hotel Check-Out is 12:00 PM
      • Hotel and all guest rooms are smoke free.
      • There are no twin bed guest rooms available.
      • Complimentary breakfast and Internet are included in the room rate.
      • Complimentary onsite parking.